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One of the S.L.E. Lupus Foundation’s most important goals is to help people with lupus understand that they are not alone with their disease. The Foundation is a valuable resource for general lupus information and referrals, and offers a variety of counseling services. Just phone us toll-free at 800.74.LUPUS (800.745.8787)
9 a.m.–5 p.m. Monday through Friday or email lupus@lupusny.org.
These are some of the services the foundation provides:
Counseling Services
- Telephone
- Short-Term One-on-One
- Family
- Grief Counseling
- Crisis Intervention
Referral Services
- Clinics
- Rheumatologists: doctors who diagnose and treat lupus
- Other Specialists: dermatology, nephrology, neurology, dental, orthopedics, cardiology, psychology, psychiatry, social work, and nutrition
- Complementary Medicine: acupuncture, biofeedback, hypnotherapy
Information
We respond to individual calls, letters, and emails requesting information on lupus. Contact the Foundation for literature on lupus, and visit our Lupus Library for a comprehensive list of books and resources available.
Assistance
The following is a list of lupus support groups and programs in the New York City–area:
NOTE: There are no fees for these services. Before attending any of these meetings, please call to confirm dates and times.
Support Groups
Staten Island
- Staten Island Support Group
Meets one hour later starting May 7th, 2008
Monthly support groups will take place on Wednesdays or Thursdays through the year (click here for exact dates), from 7:00 p.m. to 8:30 p.m., in the main conference room of the Staten Island University Hospital. All with lupus are welcome. Please contact the Foundation’s director of social services, Jamie Trachtenberg, LMSW, if you plan to attend. If you are interested in joining, please email our Director of Social Services Jamie Trachtenberg, LMSW, at jtrachtenberg@lupusny.org or call 212-685-4118 x32.
Manhattan
- The S.L.E. Lupus Foundation office
Family and individual counseling (short-term), by appointment only. 212-685-4118.
- New for ages 19 to 40+
In the summer of 2007 the Foundation started a new monthly support group for people 19 to 40 and older. The group meets the third Wednesday of every month from 6:15 p.m. to 7:30 p.m. at the Foundation's headquarters in Manhattan. If you are interested in joining, please email our Director of Social Services Jamie Trachtenberg, LMSW, at jtrachtenberg@lupusny.org or call 212-685-4118 x32.
- New for Partners of People with Lupus
The Foundation is considering creating a new monthly support group for partners (spouses, boyfriends, girlfriends, domestic partners, fiancés, fiancée, etc.) of people with lupus at its Manhattan headquarters. If you are interested in joining, please email our Director of Social Services, Jamie Trachtenberg, LMSW, at jtrachtenberg@lupusny.org or call 212-685-4118 x32.
- New for Men with Lupus
The Foundation is considering creating a new monthly support group for men with lupus at its Manhattan headquarters. If you are interested in joining, please email our Director of Social Services, Jamie Trachtenberg, LMSW, at jtrachtenberg@lupusny.org or call 212-685-4118 x32.
- NYU Hospital for Joint Diseases
301 East 17th Street, Room 523, NY, NY 10003
Various Mondays 3 p.m. – 4 p.m. Call Jacqueline Perez at 212.598.6614 for specific dates.
- Support Group at Urgent Care Center of Columbia Presbyterian
21 Audobon Avenue, between 166 and 167 Street, 2nd floor.
The support group meets two Fridays per month from 6:30 p.m. – 7:30 p.m. Contact facilitator, Adria Armbrister, 212.342.0179, ana8@columbia.edu, for information and to confirm.
Northern Manhattan
- Lupus Cooperative of New York
Northern Manhattan Division
East Harlem Council of Human Services, Inc.
Boriken Neighborhood Health Center
2253 Third Avenue, 4th floor. New York, NY 10035
Contact Maria Bonet, Lupus Outreach Counselor, 212-289-9811, EHLupusCoop@lupusny.org
Day
4th Tuesday of the month
11 a.m.–1 p.m.
Evening
3rd Thursday of the month
5:30 p.m.–7:00 p.m.
-
Also in Northern Manhattan as of March 13th, 2008
Harlem Hospital
Ronald H. Brown Building
West 137th street (between Lenox and Fifth Avenue)
3rd floor, Room 3071
Contact Maria Bonet, Lupus Outreach Counselor, 212-289-9811, EHLupusCoop@lupusny.org
Day
2nd Thursday of the month
12:30 p.m.–1 p.m.
Bronx
Brooklyn
- Lupus Cooperative of New York
Brooklyn Division
Long Island University Wellness and Recreation Center
161 Ashland Place (Lower Level)
Conference room
Brooklyn, NY 11201
Contact Tayumika Zurita, Lupus Outreach Counselor, 718-928-2002, BklynLupusCoop@lupusny.org
Day
2nd Wednesday of every month
12 p.m.
Evening
3rd Tuesday of every month
7 p.m.
- LCNY Brooklyn – New York Methodist Brooklyn Spine and Arthritis Center
263 Seventh Avenue (at 6th St)
2nd Floor Conference room
Park Slope, Brooklyn
Contact Tayumika Zurita, Lupus Outreach Counselor, 718-928-2002, BklynLupusCoop@lupusny.org
Day
Second Tuesday of every month
1:00 p.m.–2:00 p.m.
- LCNY Brooklyn – Interfaith Medical Center Support Group
Interfaith Medical Center
Bishop Orris G. Walker, Jr. Health Care Center
528 Prospect Place
Brooklyn, NY 11238
Contact Tayumika Zurita, Lupus Outreach Counselor, 718-928-2002, BklynLupusCoop@lupusny.org
Day – Specially for Students
3rd Wednesday of every other month
12 p.m.
- Brooklyn Support Group
Long Island College Hospital
Hicks Street and Atlantic Avenue, 1st Floor, Conference Room F, Brooklyn, NY.
Meets the 2nd Saturday of each month, 11 a.m. to 1 p.m. Call Karen Andreozzi at 718.488.0550 for information and to confirm.
- SUNY Downstate Support Group
450 Clarkson Avenue, Suite C, Brooklyn, NY.
Meets on Monday 12 p.m. to 1 p.m. For details, contact Sema Terrabello, RPA-C, 718.270.8216, or Karen Orloff, 718.270.1662.
- Pediatric Lupus Support Group
at SUNY Downstate Medical Center
450 Clarkson Avenue, Room B4-462 (Pediatric Library, 4th floor), Brooklyn, NY.
This support group for patients 11 to 21 years old (adults welcome as well) meets the 4th Wednesday of every month, from 5 p.m. to 6 p.m. Call Corinna Bowser at 917-760-1078 or Jack Moallem at 718-270-4178.
Queens
- Long Island/Queens Lupus Foundation
Ongoing support group
For information, call 516.783.3370 or Paula Goldstein at 516.742.5687
There are no fees for these services.
Before attending any meetings please call to confirm dates and times.
Telephone Counseling and Specialized Programs
- LupusLine, offered by Hospital for Special Surgery and made possible through funding by Rheuminations, Inc., reaches out to the communities it seeks to serve in cooperation with the S.L.E. Lupus Foundation. Telephone peer counseling staffed by trained volunteers who have lupus. Call 212.606.1952 or 866.375.1427.
- Charla de Lupus (Lupus Chat) is a peer health education program staffed by trained volunteers living
with lupus with a particular emphasis on Spanish-speaking communities. The program is available on-site at several New York City
area hospitals, as well as by phone. In addition, the program offers Teen and Parent Lupus Chat Groups
at hospital sites in NYC. The program is offered by Hospital for Special Surgery, and made possible through funding by
Rheuminations, Inc. Contact the Hospital for Special Surgery at 212.606.1958 or 866.812.4494.
- LANtern (Lupus Asian Network) Program,
offered by Hospital for Special Surgery and made possible through funding by Rheuminations, Inc., reaches out to the communities it seeks to serve in cooperation with the S.L.E. Lupus Foundation, Charles B. Wang Community Health
Center, Hospital for Joint Diseases, Chinese Community Partnership for Health at New York Downtown Hospital, and the Center for the Study of Asian American Health at NYU School of Medicine.
This program offers support, education, and outreach to the Chinese community. Trained billingual (Cantonese and Mandarin-speaking) peer
counselors, who also have lupus, are available by telephone. Contact the Hospital for Special Surgery at 212.774.2508 or 866.505.2253.
- S.L.E. Workshop at Hospital for Special Surgery, meets the
4th Thursday of the month, 12 p.m. to 2 p.m. To register, call the Coordinator at 212.774.7654. Lectures by health professionals followed by open discussion.
The following support service is available in New York City only:
Emergency Grants
The S.L.E. Lupus Foundation offers a Lupus Emergency Grant, which assists individuals with lupus during particularly trying times.
Grant Guidelines
- Grant requests will be accepted from or on behalf of any medically diagnosed person with lupus residing within the greater New York City area.
- A grantee must offer satisfactory evidence that lupus has been medically diagnosed, including doctor's verifications (medical release form).
- Applicants must identify a significant financial need and demonstrate how the grant will either cover the need or supplement personal or provider resources. Approved grants will be paid by check directly to the agency or provider.
- Grants are limited to two requests per person during any 12-month period, with an annual maximum grant of $400.
- Grants will not be made in cases where assistance is available from other sources (e.g., family, government, social agency, etc.)
Read about our multi-cultural programs.
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