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One of the S.L.E. Lupus Foundation’s most important goals is to help people with lupus understand that they are not alone with their disease. The Foundation is a valuable resource for general lupus information and referrals, and offers a variety of counseling services. Just phone us toll-free at 800.74.LUPUS (800.745.8787)
9 a.m.–5 p.m. Monday through Friday or email lupus@lupusny.org.
These are some of the services the foundation provides:
Counseling Services
- Telephone
- Short-Term One-on-One
- Family
- Grief Counseling
- Crisis Intervention
Referral Services
- Clinics
- Rheumatologists: doctors who diagnose and treat lupus
- Other Specialists: dermatology, nephrology, neurology, dental, orthopedics, cardiology, psychology, psychiatry, social work, and nutrition
- Complementary Medicine: acupuncture, biofeedback, hypnotherapy
Information
We respond to individual calls, letters, and emails requesting information on lupus. Contact the Foundation for literature on lupus, and visit our Lupus Library for a comprehensive list of books and resources available.
Assistance
The following is a list of lupus support groups and programs in the New York City–area:
NOTE: There are no fees for these services. Before attending any of these meetings, please call to confirm dates and times.
Support Groups
Staten Island
Manhattan
Northern Manhattan
Bronx
Brooklyn
Queens
Staten Island
- Staten Island Support Group
View full calendar
The S.L.E. Lupus Foundation holds monthly support groups for people living with lupus in Staten Island at Staten Island University Hospital, North Site, 475 Seaview Avenue, Staten Island, NY. We will be meeting monthly from 2:00p.m.– 4:00p.m. in the Dietary Conference Room. All with lupus are welcome. If you are interested in attending, have any questions or would like information on lupus, please contact Danielle at dhall@lupusny.org or call 212-685-4118 x32.
2010 schedule:
January 21
February 18
March 18
April 15
May 20
June 17
July 15
August 26
September 23
Manhattan
- The S.L.E. Lupus Foundation office
Family and individual counseling (short-term), by appointment only. 212-685-4118.
- Manhattan Support Groups
View full calendar
Evening Support Group
Please join us on the third Wednesday of each month at our midtown office location, 330 Seventh Avenue between West 28th and West 29th Street. The group is held from 6:00p.m.–7:30p.m. If you are interested in attending, have any questions or would like information on lupus, please contact Danielle Hall, MSW at 212-685-4118 or email at dhall@lupusny.org
Winter 2010 Schedule
January 20th
February 17th
March 17th
April 21st
May 18th
Afternoon Support Group
Please join us on the second Tuesday of each month at our midtown office location, 330 Seventh Avenue between West 28th and West 29th Street. The group is held from 2:00p.m.–3:30p.m. If you are interested in attending, have any questions or would like information on lupus, please contact Danielle Hall, MSW at 212-685-4118 or email at dhall@lupusny.org
Fall 2009/Winter 2010 Schedule
December 8th
January 12th
February 2nd
March 9th
April 13th
May 11th
- NYU Hospital for Joint Diseases
301 East 17th Street, Room 523, NY, NY 10003
Please contact Elvira Carrera at 212.598.6614 for dates and times of support groups.
Northern Manhattan
Bronx
- Bronx Support Groups
View full calendar
- Lupus Cooperative of New York
Bronx Division
1070 Southern Boulevard, 1st Floor, Bronx, NY 10459
Contact Yasmin Santiago, Lupus Outreach Counselor, 718-620-2555, BxLupusCoop@lupusny.org
Day
1st Wednesday of the month
11 a.m.–1 p.m.
Evening
4th Thursday of every month
5:30 p.m.–7:00 p.m.
- Bronx Lebanon Hospital – Support Group
1650 Grand Concourse, 2nd fl.
Bronx, NY 10465
Day
2nd Tuesday of every month
1:30 p.m.–2:30 p.m.
-
Montefiore Hospital – Support Group
The Children’s Hospital at Montefiore
3415 Bainbridge Avenue
Bronx, NY 10467
Meet in the Family Learning Place
Day
3rd Tuesday of every month
1 p.m.–2 p.m.
Brooklyn
- Brooklyn Support Groups
View full calendar
- Lupus Cooperative of New York
Brooklyn Division
Long Island University Wellness and Recreation Center
161 Ashland Place (Lower Level)
Conference room
Brooklyn, NY 11201
Contact Tayumika Zurita, Lupus Outreach Counselor, 718-928-2002, BklynLupusCoop@lupusny.org
Day
2nd Wednesday of every month
12 p.m.
Evening
3rd Tuesday of every month
7 p.m.
- LCNY Brooklyn – New York Methodist Brooklyn Spine and Arthritis Center
263 Seventh Avenue (at 6th St)
2nd Floor Conference room
Park Slope, Brooklyn
Contact Tayumika Zurita, Lupus Outreach Counselor, 718-928-2002, BklynLupusCoop@lupusny.org
Day
Second Tuesday of every month
1:00 p.m.–2:00 p.m.
- LCNY Brooklyn – Interfaith Medical Center Support Group
Interfaith Medical Center
Bishop Orris G. Walker, Jr. Health Care Center
528 Prospect Place
Brooklyn, NY 11238
Contact Tayumika Zurita, Lupus Outreach Counselor, 718-928-2002, BklynLupusCoop@lupusny.org
Day – Specially for Students
3rd Wednesday of every other month
12 p.m.
- Brooklyn Support Group
Long Island College Hospital
Hicks Street and Atlantic Avenue, 1st Floor, Conference Room F, Brooklyn, NY.
Meets the 2nd Saturday of each month, 11 a.m. to 1 p.m. Call Karen Andreozzi at 718.488.0550 for information and to confirm.
- SUNY Downstate Support Group
450 Clarkson Avenue, Suite C, Brooklyn, NY.
Meets on Monday 12 p.m. to 1 p.m. For details, contact Sema Terrabello, RPA-C, 718.270.8216, or Karen Orloff, 718.270.1662.
- Pediatric Lupus Support Group
at SUNY Downstate Medical Center
450 Clarkson Avenue, Room B4-462 (Pediatric Library, 4th floor), Brooklyn, NY.
This support group for patients 11 to 21 years old (adults welcome as well) meets the 4th Wednesday of every month, from 5 p.m. to 6 p.m. Call Corinna Bowser at 917-760-1078 or Jack Moallem at 718-270-4178.
Queens
- Long Island/Queens Lupus Foundation
Ongoing support group
For information, call 516.783.3370 or Paula Goldstein at 516.742.5687
There are no fees for these services.
Before attending any meetings please call to confirm dates and times.
Telephone Counseling and Specialized Programs
- LupusLine, offered by Hospital for Special Surgery and made possible through funding by Rheuminations, Inc., reaches out to the communities it seeks to serve in cooperation with the S.L.E. Lupus Foundation. Telephone peer counseling staffed by trained volunteers who have lupus. Call 212.606.1952 or 866.375.1427.
- Charla de Lupus (Lupus Chat) is a peer health education program staffed by trained volunteers living
with lupus with a particular emphasis on Spanish-speaking communities. The program is available on-site at several New York City
area hospitals, as well as by phone. In addition, the program offers Teen and Parent Lupus Chat Groups
at hospital sites in NYC. The program is offered by Hospital for Special Surgery, and made possible through funding by
Rheuminations, Inc. Contact the Hospital for Special Surgery at 212.606.1958 or 866.812.4494.
- LANtern (Lupus Asian Network) Program,
offered by Hospital for Special Surgery and made possible through funding by Rheuminations, Inc., reaches out to the communities it seeks to serve in cooperation with the S.L.E. Lupus Foundation, Charles B. Wang Community Health
Center, Hospital for Joint Diseases, Chinese Community Partnership for Health at New York Downtown Hospital, and the Center for the Study of Asian American Health at NYU School of Medicine.
This program offers support, education, and outreach to the Chinese community. Trained billingual (Cantonese and Mandarin-speaking) peer
counselors, who also have lupus, are available by telephone. Contact the Hospital for Special Surgery at 212.774.2508 or 866.505.2253.
- S.L.E. Workshop at Hospital for Special Surgery, meets the
4th Thursday of the month, 12 p.m. to 2 p.m. To register, call the Coordinator at 212.774.7654. Lectures by health professionals followed by open discussion.
The following support service is available in New York City only:
Emergency Grants
The S.L.E. Lupus Foundation offers financial help to people with lupus undergoing particularly trying times.
Grant Guidelines
- Grant requests are accepted from, or on behalf of, individuals diagnosed with lupus who live within the greater New York City area.
- Applicants must offer satisfactory evidence that lupus has been medically diagnosed. Evidence provided must include a doctor’s verification (a medical release form).
- Applicants must demonstrate a significant financial need and show how the grant will either meet the need in full or supplement other resources.
- Emergency Grants are paid by check directly to the agency or provider.
- Grants are limited to 2 per person in any 12-month period, with an annual total of no more than $400.
- Grants are not considered for funding when assistance from other sources (family, government, social agency, etc.) is deemed available.
Read about our multi-cultural programs.
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