Advocacy

Take a New York minute and make your voices heard on an important health care issue that impacts our ability to receive the most suitable treatments. Let your NYS Legislators know that Step Therapy/First Fail protocol delays patient access to medications, creates more obstacles for patients and physicians to overcome, denies continuity of care, and FAILS all of us. That's why one of our co-members in the Lupus Agencies of NYS, the Lupus Foundation of Mid and Northern New York, Inc., created a petition to The New York State Assembly and The New York State Senate.

Will you please sign this petition? Click here: Step Therapy FAILS Us!

Providing a voice for patients with lupus through advocacy programs is a key component of the Foundation’s mission. Working on both the national and local levels, efforts focus on influencing policy in such areas as drug reimbursement, the establishment of Preferred Drug Lists, racial disparities, and securing federal funding to close the gap in lupus research.

The Foundation advocates on behalf of patients to stimulate and promote legislation aimed at developing better treatments and, ultimately, a cure for lupus. We also actively work to oppose bills that have a detrimental effect on health care and biomedical research in lupus.

Add Your Voice for Lupus on Capitol Hill Today!

LRI Congratulates U.S. Congress for Passing Omnibus Bill HR 2055 Appropriating $1 Million to Lupus Medical Education

Senate Appropriations Committee Gives On-Going Support to LRI-Initiated National Lupus Health Education Program

Lupus Research Institute Underscores Urgent Need for Research in Pediatric Lupus at International Lupus Congress

Advocacy Results in Congressional Funding Of New National Lupus Health Education Program 

 


The<br />
Lupus Research Institute (LRI) National Coalition

The S.L.E. Foundation is a proud member of The Lupus Research Institute (LRI) National Coalition, the advocacy network of state and local lupus organizations and other supportive groups united to:

  • Promote increased education and awareness of the seriousness of lupus and the need for increased research.
  • Advocate for the eradication of lupus through vigorous public and private-supported research efforts.
  • Collaborate on initiatives aimed at increasing funding for novel research in lupus.
  • Empower lupus patients to actively advocate for improved treatments and a cure.