The S.L.E. Lupus Foundation recommends the following websites as additional resources for lupus patients, friends, and family.

Government

• National Institute of Health (Fact Sheet on Lupus) www.nih.gov/about/researchresultsforthepublic/Lupus.pdf
• ClinicalTrials.gov www.clinicaltrials.gov
• Healthfinder www.healthfinder.gov
• MEDLINEplus www.medlineplus.gov/
• MEDLINEplus Lupus Patient Education Page http://www.nlm.nih.gov/medlineplus/tutorials/lupus/htm/_no_100_no_0.htm
• National Center for Chronic Disease Prevention and Health Promotion CDC) www.cdc.gov/nccdphp/
• National Center for Complementary and Alternative Medicine (NCCAM) http://altmed.od.nih.gov
• National Institute of Allergy and Infectious Diseases (NIAID) www.niaid.nih.gov
• National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) www.niams.nih.gov
• National Institute of Diabetes & Digestive & Kidney Diseases (NIDDK) www.niddk.nih.gov
• National Institutes of Health (NIH) www.nih.gov
• The National Women’s Health Information Center www.4woman.gov
• News from the National Institutes of Health (NIH) www.eurekalert.org/nih
• Office of Research on Women’s Health www4.od.nih.gov/orwh/
• The Office on Women's Health (OWH) www.4woman.gov/owh
• Agency for Healthcare Research and Quality www.ahcpr.gov/

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Medical and Health Care Organizations

• American Academy of Allergy Asthma & Immunology www.aaaai.org
• American Academy of Dermatology www.aad.org
• The American Academy of Facial Plastic and Reconstructive Surgery www.facemd.org
• American Autoimmune Related Diseases Association www.aarda.org
• American College of Rheumatology www.rheumatology.org
• American Fibromyalgia Syndrome Association, Inc. www.afsafund.org
• American Medical Association www.ama-assn.org
• Antiphospholipid Antibody Syndrome Foundation of America www.apsfa.org
• Arthritis Care (UK) www.arthritiscare.org.uk
• Arthritis Foundation www.arthritis.org
• The Arthritis Society (Canada) www.arthritis.ca
• Arthritis Daily www.arthritisdaily.com
• Dermalogica: Skin Care System Researched and Developed by the International Dermal Institute www.dermalogica.com
• Fibromyalgia Association of Greater Washington www.fmagw.org
• Lupus, Lupus Treatment, Hughes Syndrome - The London Lupus Centre www.londonlupuscentre.co.uk
• The Myositis Association www.myositis.org
• National Fibromyalgia Association www.fmaware.org
• National Osteoporosis Foundation www.nof.org
• National Pain Foundation www.nationalpainfoundation.org
• National Sarcoidosis Resource Center www.nsrc-global.net
• Online Health Resources www.onlinehealthresources.com
• Raynaud’s & Scleroderma Association (UK) www.raynauds.demon.co.uk
• Scleroderma Foundation www.scleroderma.org
• Sjogren’s Syndrome Foundation www.sjogrens.org
• Society for Women’s Health Research www.womens-health.org

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Other Lupus Organizations

• European Lupus Erythematosus Federation (ELEF) www.elef.rheumanet.org
• Lupus Alliance of America www.lupusalliance.org
• Lupus Canada www.lupuscanada.org
• Lupus Foundation of America www.lupus.org
• Lupus Foundation of America, Illinois Chapter www.lupusil.org
• Lupus Foundation of Colorado www.lupuscolorado.org
• Lupus Foundation of New England www.lupusne.org
• Lupus Foundation of Northern California www.lfnc.org
• Lupus Foundation of Pennsylvania www.lupuspa.org
• Lupus Mid-Atlantic www.lupusmd.org
• Lupus Research Institute www.lupusresearchinstitute.org
• Alliance for Lupus Research www.lupusresearch.org
• DxLupus www.dxlupus.org

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New York City Hospitals

• Bellevue Hospital Center www.ci.nyc.ny.us/html/hhc/bellevue/home.html
• Beth Israel Medical Center www.wehealny.org/patients/bimc_description.html
• Columbia University Medical Center http://cpmcnet.columbia.edu
• Hospital for Joint Diseases www.hjd.org
• Hospital for Special Surgery www.hss.edu
• Lenox Hill Hospital www.lenoxhillhospital.org
• Metropolitan Hospital Center www.ci.nyc.ny.us/html/hhc/html/metropolitan.html
• Montefiore Medical Center www.montefiore.org
• New York-Presbyterian: The University Hospital of Columbia and Cornell www.nyp.org
• New York University Medical Center www.med.nyu.edu
• North Shore-Long Island Jewish Health System www.northshorelij.com
• Saint Luke’s-Roosevelt Hospital Center www.wehealny.org/patients/slr_description.html
• Saint Vincent Catholic Medical Centers www.svcmc.org

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Other Useful Sites

• Arthritis of the hip and knee www.hipsandknee.com
• Doctor certification information www.certifieddoctor.com
• Doctor licensing information www.docboard.org
• HealthScout www.healthscout.com
• American Heart Association www.americanheart.org
• Johns Hopkins University Welch Medical Library www.welch.jhu.edu/
• Lupus UK www.geocities.com/HotSprings/2911
• Mayo Clinic www.mayoclinic.com
• Medicare Interactive www.medicareinteractive.org
• Meals For You www.mealsforyou.com
• MedicineNet www.medicinenet.com
• The Merck Manuals www.merck.com/pubs/
• Rx List www.rxlist.com
• ABC’s of Melanoma www.melanoma.com
• The University of California's Berkeley Wellness Letter www.berkeleywellness.com
• WebMD www.WebMD.com

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Lupus Blogs

More and more, people with lupus are writing personal online journals (“blogs”) about their experiences with the disease. Below are links to a number of these blogs currently on the World Wide Web. Note: The thoughts and feelings expressed on these sites do not represent the opinions or views of the S.L.E. Lupus Foundation.

Do you “blog” about life with lupus as well? Let us know! Email lstegmaier@lupusny.org to ask about sharing your site with us.

• But You Don’t Look Sick http://www.butyoudontlooksick.com/
• Carpe Diem – Seize the Day http://journals.aol.com/princesssaurora/CarpeDiem/
• Dancing with Butterflies http://www.emmyrose.com/
• Karyl's Glimpses of Eternity: Lupus and Life http://journals.aol.com/klconard1/GlimpsesofEternity/
• Keep Working, Girlfriend http://keepworkinggirlfriend.com/
• Laughing with Mr Lupus http://mrlupus.blogspot.com/
• Living La Vida Lupus http://www.healthdiaries.com/lupus/lisa/
• Living with LUPUS! http://blogs.ebay.com/anaxor02
• Life Beyond Lupus http://journals.aol.com/lrttklly/LupusLeftovers/
• Luanne's Life Living with Lupus http://journals.aol.com/thebaabee/LUANNESLIFELIVINGWITHLUPUS/
• LUPUS: My View after 35 Years http://www.lupusbookonline.com/
• Lupus and Humor http://lupusandhumor.blogspot.com
• Lupus and lupus-related illnesses' Journal http://community.livejournal.com/copingwithlupus/
• Lupus Lifestyle http://www.lupuslifestyle.blogspot.com/
• Lupus McDupus http://blog.360.yahoo.com/blog-SrLYA.Q8fqrNQc3e_HPClHCn_zSQvQY-?cq=1
• Mommy, Please Don't Be Sick http://www.mommypleasedontbesick.blogspot.com/
• Pieces of Me http://emmyrose.bravejournal.com/
• Tengo Lupus http://tengolupus-carme.blogspot.com/
• Winning Against LUPUS (SLE) http://winningagainstlupus.blogspot.com/
• Wolves Ate My Kidneys http://wolvesatemykidneys.blogspot.com/

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