S.L.E. Lupus Foundation - Leading the Fight Against Lupus

October 2007

October is Lupus Awareness Month
Learn About Lupus, Get into the Loop!
For more than 35 years, the S.L.E. Lupus Foundation has been providing help for people with lupus and their families, funding lupus research and fostering public awareness of this chronic illness.

What You Should Know About Lupus
Get into the Loop!

This Lupus Awareness Month, we encourage you to team up with the S.L.E. Lupus Foundation and Lupus LA to spread public awareness of this often misdiagnosed and misunderstood disease.

Each Monday, we send you an email featuring important information on a specific topic in lupus, as well as updates on awareness events and fundraisers.

Please forward these emails to your friends and family members to help them learn more about lupus.

Lupus: Pregnancy and Family Planning

Many women with lupus do well during pregnancy, giving birth to full-term babies with no complications. While disease flares may be more frequent during pregnancy, they usually are mild. However, before a woman with lupus becomes pregnant, she should contact her doctor. Doing this can increase the chances of a healthy outcome for mother and child. Many women with lupus see a special "high-risk obstetrician" specializing in complicated pregnancies.

Do women with lupus have fertility problems? Women with lupus are just as likely to get pregnant as other women their age. Advance planning is important, however, since certain lupus medicines are not good for a growing fetus to be exposed to. More »

Once a woman with lupus is pregnant, what is the likelihood of a problem? A woman with lupus is more likely than women without the disease to have a miscarriage or develop high blood pressure (called pre-eclampsia) that can end a pregnancy. More »

Why is the risk of miscarriage higher in women with lupus? About one-quarter to one-third of women with lupus have substances in their blood called antiphospholipid antibodies (aPL). These antibodies make it more likely that a miscarriage or a blood clot (even when not pregnant) will occur. More »

Are babies of mothers with lupus healthy? Usually, yes. However, a small number of babies-about 2 in every 100-born to women with specific antibodies in the blood (called anti-Ro or anti- SSA) have a condition called neonatal lupus. More »

What is the best kind of birth control for a woman with lupus to use? For a woman with lupus, the very personal choice of which birth control method to use is complicated by the fact that one of the main options-birth control pills (oral contraception)-usually contain female hormones that many experts long believed could trigger or worsen lupus. More »

Haga clic aquí para la información del lupus en español »

Letters for Lupus:
Send Your Thank You Letters Today!

In June 2004, advocates from the Lupus Research Institute National Coalition met with House Appropriations Committee Chairman, Bill Young (R-Fla), to describe the need for a 5-year research plan for lupus across all relevant Institutes of the NIH. As a result of this important meeting, the Fiscal 2005 House Appropriations Committee Report asked the NIH to develop a lupus strategy to "cover the full spectrum of lupus research." More »

Today, the strategic plan we asked for is here:
The Future Directions of Lupus Research

To thank him for his dedication, the Lupus Research Institute just sent Congressman Young this letter.

This Lupus Awareness Month, we're calling on all lupus advocates to send us their own thank you letters to Congressman Bill Young - and we want lots of them!

Our "Letters for Lupus" campaign is an opportunity to raise the visibility of lupus research on a significant national level. Write your own letter of appreciation, and encourage Congressman Young and his colleagues to keep up the good work! Let him know how important their commitment to lupus research is to you.

Send your letters to the LRI and we'll deliver them directly to Congressman Young's office in Washington, DC. We need to act quickly! We are calling for all letters by November 20th, 2007

Letters can be emailed to lstegmaier@lupusny.org or mailed to:

Thank You Congressman Young!
c/o Lupus Research Institute
330 Seventh Ave, Suite 1701
New York, NY 10001

Let's raise our voices together to get the word out and the letters in!

Final Week: New York City Hospital Tour

If you haven't joined us for the New York City Hospital Tour yet, there's still time!

Tuesday, October 30th - 6 PM to 8 PM
Qué Usted Debe Saber Acerca del Lupus
with Eneida Agosto-Colon, MD and Giovanni Franchin, MD

Bronx-Lebanon Hospital Center
Hospital Auditorium at Concourse
1650 Grand Concourse, Bronx, NY

Thursday, November 1st - 6 PM to 8 PM
The Latest on Lupus
with Mark Jarrett, MD

Staten Island University Hospital North Campus
Medical Arts Pavilion, 2nd Floor Great Room
242 Mason Ave., Staten Island, NY

Register for these free programs: Call 212-685-4118 or email sresto@lupusny.org Give name, address, phone and number attending. Call for directions.

New York Goes Orange for Pumpkin Festival and Lupus Awareness Month

With Help from Famed NFL Pro-Bowler Jerome "The Bus" Bettis

On Saturday, October 27th, thousands of New York City families got "into the loop" with the S.L.E. Lupus Foundation at the first-ever Pumpkin Festival in Central Park, presented by Camp Sunshine and the City of New York Department of Parks & Recreation. More than 30,000 carved pumpkins lined the park's paths, while the Foundation distributed nearly 10,000 orange lupus awareness wristbands saluting Lupus Awareness Month.

Former NFL Super Bowl star Jerome "The Bus" Bettis made a special appearance at the S.L.E. Lupus Foundation's tent to help pass out wristbands and lupus fact cards, and sign autographs and take pictures with fans. As a presenting sponsor and long-time partner of Camp Sunshine, the Foundation also hosted festival's Pumpkin Patch and gave away gourds to the first 7,500 attendees.

Read more and view photos from the event »

Join Us in the Fight Against Lupus!
S.L.E. Lupus Foundation logo

Take the opportunity this lupus awareness month to become a member of the S.L.E. Lupus Foundation and help to increase public awareness, provide education, and fund research leading to new treatments and a cure for lupus.

If you live in Southern California and would like to become a member of Lupus LA, email info@lupusla.org to receive a membership form by mail.


Contact Information

phone: 212.685.4118
Join our mailing list!