S.L.E. Lupus Foundation - Leading the Fight Against Lupus

November 2007
For nearly 40 years, the S.L.E. Lupus Foundation has been providing help for people with lupus and their families, funding lupus research and fostering public awareness of this chronic illness. Today, with its West Coast division, Lupus LA, and its national research partner, the Lupus Research Institute, the Foundation is improving lives across the country while pioneering paths to a cure.

Upcoming Events
 
Life Without Lupus Gala 2007
Gala 2007


Monday, December 3rd at the
New York Marriott Marquis in Times Square

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Carol and Michael Weisman Honoring Carol and Michael Weisman

Mistress of Ceremonies: Today Show anchor Hoda Kotb

Special performance: Broadway star Patti LuPone

Esteemed lupus researcher Benjamin Schwartz, MD, PhD of Washington University in St. Louis will receive the Scientific Leadership Award and Aspreva Pharmaceuticals will receive the Corporate Leadership Award.




What's New
 
New Teen Message Board

Teens with Lupus!

The S.L.E. Lupus Foundation has launched a message board for you at www.LupusNY.org/Forums. Visit us in this safe, supportive environment.

The board is young people with lupus between the ages of 13 and 21 and will be moderated by Dr. Patricia Ines Irigoyen, a board-certified pediatric rheumatologist and an assistant professor of pediatrics at Children's Hospital at Montefiore Medical Center in the Bronx. She received her medical degree from Columbia University College of Physicians & Surgeons and completed her training at Children's Hospital of New York, which is part of New York Presbyterian Hospital. The author of several medical journal articles and the recipient of numerous honors for her work, Dr. Irogoyen enjoys working with teens and helping them navigate the way to adulthood. She is also fluent in Spanish.

Visit the Young People's Community

Highlights
 
"Hollywood Bag Ladies" Honor Marla and Nicole Paxson
Nicole Paxson, Mary Norton, Marla Paxson

Benefit Luncheon Hosted by Foundation's West Coast Division Raises $550,000

Now in its fifth year, the Lupus LA "Hollywood Bag Ladies Luncheon" on November 7th featured an auction of more than 400 celebrity- and designer-donated handbags, raised more than half a million dollars, and drew famous faces from television and film to the Beverly Wilshire Four Seasons Hotel. One of the liveliest events on the Hollywood social scene, Marla Maples served as mistress of ceremonies for the luncheon and handbag auctions.

Founding Lupus LA member, Marla Paxson, and her daughter, Nicole, received the organization's "Women of Achievement" award in recognition of their dedication to raising funds for bold and novel lupus research through Lupus LA's support of the Lupus Research Institute. Luxury handbag and shoe designer Mary Norton, who was diagnosed with lupus nearly a decade ago, presented a knock-out fashion show of selections from her recent collections.

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View photos from this event


175+ Young Professional Party to Support the Fight Against Lupus


Celebrating Lupus Awareness Month in style, the Young Professionals Committee of the S.L.E. Lupus Foundation hosted its third annual fundraiser on October 11th at PM Lounge in Manhattan's fashionable Meatpacking District.

Young professionals with lupus, their friends, family members and supporters raised $25,000, lifting their voices (and their glasses!) to support the fight against a disease that devastates the lives of more than 1.5 million Americans and millions more worldwide.

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View photos from this event

Research News
 
Latest Headlines from the Lupus Research Institute

+ LRI Advocacy Victory
New NIH Plan, Initiated by LRI Clarion Call, Brightens Horizon for Lupus Research More

+ New Round of LRI Awards Brings Promise of More Breakthroughs
12 Grants Enable Testing of Innovative Hypotheses More

+ LRI Opens New Directions in Autoimmune Disease Research
Early Immune System Error Challenges Basic B-Cell Biology in Lupus More

+ LRI Triggers Cascade of New Links--and Possible Solutions--to Early Heart Disease in People with Lupus More

+ LRI Leads the Lupus Biomarker Search More

+ Surge in Biomarker Research Signals New Hope for Diagnosing and Managing Lupus More


More Research Headlines:

+ Mycophenolate Mofetil Reduces Lupus Flares and Cuts Prednisone Use
+ Researchers Investigate Ways to Detect Lupus-associated Kidney Disease
+ Biomarkers May Identify Risk for Preeclampsia in Lupus Pregnancies
+ Mayo Clinic Shows Therapy Effective for Reducing Lupus Flares
+ Fish Oil Supplements May Ease Lupus Omega-3s Also Boost Heart and Vascular Health in Lupus Patients




Advocacy Victory for the LRI National Coalition
 
Letters for Lupus: Send Yours Today!

In June 2004, advocates from the Lupus Research Institute National Coalition (of which the S.L.E. Lupus Foundation is a member) met with House Appropriations Committee Chairman, Bill Young (R-Fla), to describe the need for a 5-year research plan for lupus across all relevant Institutes of the NIH. As a result of this important meeting, the Fiscal 2005 House Appropriations Committee Report asked the NIH to develop a lupus strategy to "cover the full spectrum of lupus research." More

Today, the strategic plan we asked for is here:
The Future Directions of Lupus Research

To thank him for his dedication, the Lupus Research Institute just sent Congressman Young this letter.

Now, we're calling on all lupus advocates to send us their own thank you letters to Congressman Bill Young - and we want lots of them!

Our "Letters for Lupus" campaign is an opportunity to raise the visibility of lupus research on a significant national level. Write your own letter of appreciation, and encourage Congressman Young and his colleagues to keep up the good work! Let him know how important their commitment to lupus research is to you.

Send your letters to the LRI and we'll deliver them directly to Congressman Young's office in Washington, DC. We need to act quickly! We are calling for all letters by November 30th, 2007

Letters can be emailed to lstegmaier@lupusny.org or mailed to:

Thank You Congressman Young!
c/o Lupus Research Institute
330 Seventh Ave, Suite 1701
New York, NY 10001


Let's raise our voices together to get the word out and the letters in!


Become a Member!
 
Join Us in the Fight Against Lupus!
S.L.E. Lupus Foundation logo

Take the opportunity this lupus awareness month to become a member of the S.L.E. Lupus Foundation and help to increase public awareness, provide education, and fund research leading to new treatments and a cure for lupus.
JOIN NOW


If you live in Southern California and would like to become a member of Lupus LA, email info@lupusla.org to receive a membership form by mail.



 

Contact Information

phone: 212.685.4118

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