November 2011

Succeeding Together with Science and Service

The S.L.E. Lupus Foundation, along with our Coalition of patient advocacy organizations throughout the country, works tirelessly to raise funding for scientific research as well as the many patient services provided. Successful fundraising events include:

Running for Research

Once again, our ING NYC Marathon Team Life Without Lupus banded together against a common enemy, raising more than $110,000 to aid lupus research and support programs. Top fundraiser 58-year-old Nora Johnson exceeded her goal with a donation of $15,584. “It’s my first marathon in 19 years, but since lupus touched our family six months ago we have become passionate about the fight against this potentially life threatening autoimmune disorder. The 26.2 miles was a challenge, but nothing compared to the challenges faced every day by people who have lupus.”

We were particularly touched to see lupus patients like Amy hitting the pavement — a testament to what individuals can do when they set their minds, and their muscles, to the task. Clad in bright orange Life Without Lupus jerseys, our team had the support of thousands cheering from the sidelines.

“Life Without Lupus” Gala 2011 Raising Millions for Science & Service

More than 700 of New York City’s philanthropic, business and health care communities will join forces for S.L.E. Lupus Foundation’s “Life Without Lupus Gala 2011: A Night at the Museum” on November 21, 2011 at The American Museum of Natural History.

U.S. Senator Frank R. Lautenberg and Mrs. Bonnie Englebardt Lautenberg will be honored for helping to make lupus a national priority. Daniel J. Wallace (MD, FACP, FACR), founder of Lupus LA, will be presented with the Foundation’s Medical Leadership Award for his contributions to lupus clinical research.

We are well on our way to reaching a goal of $2 million. But with your help, we can set a new record. Tickets are selling out, so please let us know if you’re planning to attend as soon as possible. Purchase Tickets

Serving Lupus Patients Well

The S.L.E. Lupus Foundation along with the Lupus Research Institute’s National Coalition of lupus patient organizations exists to serve patients throughout the country with online as well as in-person programs.  A new free one-hour webinar scheduled for November 30, “Lupus and Pregnancy” offers an opportunity to learn from lupus neonatal expert Dr. Jill Buyon, Vice Chairman of the Department of Rheumatology at the Hospital for Joint Diseases. Information and Registration

Another kind of service we take pride in is keeping patients informed of news in the field that may impact current and future lupus treatment. To keep up with the latest in drug development, representatives from the S.L.E. Lupus Foundation, the Lupus Research Institute and its Coalition of lupus patient organizations throughout the country attended the American College of Rheumatology annual scientific conference last week in Chicago. Read more on our website about the encouraging research presented at the conference.

For those in the New York area, the S.L.E. Lupus Foundation offered lupus patients a dose of the best medicine — laughter. A special weekly support group was led by guest Carla Ulbrich, author of a book about her own experiences with lupus called "How Can You Not Laugh at a Time like This?” Regaled by her stories and original songs, attendees seemed to enjoy Carla’s particular brand of “sick humor!” Check our website for news of an encore performance!