September 2010

“Ask for a partner – you can't do lupus alone!”

That’s what we told 23-year-old New Yorker Amy S. when she came to us for advice and referrals to doctors. She’d just learned that she had lupus—and that it could take her life.

Amy was terrified.

“I was so tired. I hurt all over. I thought my dreams of being a chef and having kids were over.” Fatigue and joint pain had set in, as it does for so many of the 1.5 million Americans with lupus. And Amy was worried that lupus might attack her kidneys, heart, or brain.


She’s not alone.

The S.L.E. Lupus Foundation provided Amy with the kind of comprehensive and free services we’ve given to New Yorkers with lupus for 40 years—and then we suggested she take part in our ”Get Into the Loop Partnering for Lupus” program.

We connected Amy with Angela, another young woman with lupus. Now Amy has that extra someone to reach out to, a lupus partner who “gets it.”

Together, they make each other stronger.

In the middle of a lupus flare, when she needs a steady, soothing voice to talk her through another blood test or doctor’s visit or job interview…Amy reaches out to Angela, whom she can count on to understand her fears and frustrations.

Soon enough, the advice is going both ways.

Now we’re asking for your help—because we can’t do it all by ourselves. We need partners in our fight against lupus.

Help us reach our goal of making 40 “Lupus Partnerships” by the end of this 40th anniversary year with a contribution of $35 or $70 (for two matches!) or whatever you can manage.


Donate Now  


Because someone you know has lupus—and no one
should have to do lupus alone.