March 2010

New Yorkers Shout It Out:
Lupus Research Today!

Tell Congress 2010

Fifteen delegates from the Empire State—and dozens more from the rest of the nation—are in D.C. this week.

Be there too, as an online lupus advocate, and show Congress just how powerful our National Coalition's Patients' Voice for Lupus Research is!

On Thursday, March 4th:

Send a message by email, Twitter, Facebook.
(Check out tips for finding your congresspersons' contact info here.)

*Tell Congress! Keep funding—and increase to $35 billion—biomedical research support at the National Institutes of Health for fiscal year 2011.

*Tell Congress! Lessen the disparities in care for people with lupus. Designate $5 million to the Department of Health and Human Services’ Office of Minority Health to continue funding the new lupus education program for healthcare providers.

Spread the word:
Share this Facebook event link with your friends and family

Follow updates from our advocates on the Hill
at and

Save the Date

New York Bag Ladies Luncheon!

Tuesday, May 4th at 11am
at 583 Park Avenue

This festive event will feature a silent
(but lively!) auction of beautiful designer and celebrity handbags.

Purchase tickets

Still Space to "Tri" for the Cure!

Join Team Life Without Lupus in the
Nautica NYC Triathlon

Sunday, July 18, 2010
Manhattan, New York City

More information & how to apply

Ironman triathlete Scott Cohen—he’s completed 30 marathons!—will be your trainer for the 10-week training program. Starts in May and meets as a group three times weekly. Find out more about Scott (pictured above).

Surveying You to Serve You!

Did you get a survey in the mail from us recently? We’re partnering with Yeshiva University in surveying people with lupus who live in New York City.

The goal: to enable social workers and other health care providers to better help and care for people living with lupus in our city. The survey asks about how lupus has impacted your life, takes about 10 to 15 minutes to complete, and stays anonymous—we promise.

If you haven’t already, please fill it out and send it back. We’ll let you know about results on Twitter, Facebook, and on our Web site,

We—and all the people with lupus in our city, THANK YOU!

Braving Winter Weather to Get Together!

More than 50 Friends with Lupus from East Harlem, Brooklyn, and the Bronx Gather at Life Without Lupus Pot Luck Luncheon. Read more.

When Hair Loss Happens
with Lupus

You aren’t powerless
Check out the latest strategies for fighting back.

- Save the Date to get health and beauty tips at our 3rd Annual Living Life Healthy with Lupus Day on May 1st at Manhattan’s Hospital for Special Surgery! A pic from last year’s event is at right.