S.L.E. Lupus Foundation - Leading the Fight Against Lupus

July 2008

For nearly 40 years, the S.L.E. Lupus Foundation has been providing help for people with lupus and their families, funding lupus research and fostering public awareness of this chronic illness. Today, with its West Coast division, Lupus LA, and its national research partner, the Lupus Research Institute, the Foundation is improving lives across the country while pioneering paths to a cure.
Get into the Loop!
What You Should Know about Lupus




Not All Sunscreens Are Alike

We've just released a new brochure in our "What You Should Know about Lupus" series: Lupus and Your Skin by Dr. Andrew G. Franks, Jr., a New York City dermatologist and expert on lupus skin complications.

In it, he gives advice on smart sunscreen choices:


"Choose a product with a Sun Protection Factor of 30 or higher and which contains avobenzone (Parasol 1789), titanium dioxide, and/or zinc oxide, as these provide the broadest protection against both UVA and UVB. A newer ingredient, mexoryl, is available in some sunscreens and is very effective against UVA. Slather on before makeup, and no less than 10 minutes before going outside."


Would you like to read more? »


Or think your doctor should display this brochure and others in the "What You Should Know about Lupus" series?
Call us at 800-74-LUPUS and we'll send you copies to take with you on your next visit. See a list of all our "What You Should Know about Lupus" brochures »

Dr. Franks, who penned the brochure, is launching a clinical trial on lupus and skin, one of dozens of trials that needs volunteers. The goal: better treatments and a cure for lupus. Find a trial near you by searching LupusTrials.org »


S.L.E. Lupus Foundation - Leading the Fight Against Lupus

A Makeover for the Face of Lupus

Lupus LA supporter Nicole Paxson, who has lupus, is fighting back against the disease by creating a line of cosmetics that helps women -- no matter what challenges they've faced -- regain confidence in the way they look. See what she's done »


Good News for Seniors with Lupus

Last week, congress voted to force the enactment of the Medicare Improvements for Patients and Providers Act, which means, among other things, that people with lupus on Medicare will now have easier access to "off-label" medications and also get coverage of certain medicines, such as benzodiazepines, that Medicare Part D currently excludes. Learn more »




What's Been Happening?

Learning from the Experts on Lupus in LA

The city's largest annual lupus patient education conference drew over 100 people to hear about research and rising prospects for better prevention and treatments. At the podium were some of the city's finest lupus physicians and investigators.

One of the topics that generated a lot of conversation was complimentary and alternative medicine approaches to lupus, presented by Swamy Venuturupalli, MD. View his slide show as well as others from the conference at LupusLA.org »

Dr. Dan Wallace and Dr. Mariko Ishimori Audience members at Lupus LA's Patient Education Conference

June in New York: Three Unique Programs, 500+ Attendees, Immeasurable Impact!

Living Healthy with Lupus at HSS
As summer launched, we were busy with new events around the city such as our Living Healthy with Lupus program at the Hospital for Special Surgery in Manhattan (that offered makeovers, massages and more) and our first lupus Creole presentation in Brooklyn.

Thanks to all those who attended, and to those who missed out, more programs are headed your way! Email us with ideas on what you'd like to see at lupus@lupusny.org.

NY's Young Leadership Committee Kicks Off Summer

Summertime Kickoff Party at Water Taxi BeachMore than 100 young professionals and lupus supporters celebrated the official start of summer on the Queens riverfront at sandy Water Taxi Beach, which generously provided food and heat-beating libations -- and a spectacular view of the sunset over midtown. View Photos »

Next: the committee's biggest annual fundraiser, The Night for the Fight on Thursday, September 25th at Touch. Come to network, dance, participate in our luxury item raffle and raise funds to fight lupus with your friends and coworkers. Tickets go on sale in August.
What's Coming Up?

Loops for LupusLupus LA at the NASCAR PEPSI 500
Sunday, August 31th
Auto Club Speedway - Fontana, CA

Join Lupus LA at southern California's biggest Labor Day party! As a featured charity partner, we'll pass out lots of information on lupus and sign up new members. Until July 31st -- just a few days from now -- we're offering a special "Loops for Lupus" ticket package for $95 -- nearly half of which comes back to the cause.
For tickets, log onto www.autoclubspeedway.com/lupus.

Have ideas on other potential sponsors or partners for lupus? Let us know! Email lupus@lupusny.org.


It's Going to Be a Busy Fall — Join Us!

September + October (Dates/Locations TBA)
Get into the Loop! Hospital Tour 2008
in Manhattan, Brooklyn, Queens, Staten Island and the Bronx


Thursday, September 25th

Young Leadership Committee's Night for the Fight
at Touch - New York, NY


Saturday, October 25th
New York Pumpkin Festival
at Central Park - New York, NY

Friday, November 7th

Lupus LA Hollywood Bag Ladies Lupus Luncheon
at the Beverly Wilshire Hotel in Los Angeles

Thursday, November 20th
"Life without Lupus" Gala 2008
at the Marriott Marquis in New York

 

About the S.L.E. Lupus Foundation
The S.L.E. Lupus Foundation is the preeminent lupus organization providing direct patient services, education, public awareness, and funding for lupus research.

S.L.E. Lupus Foundation

About Lupus LA
Lupus LA, the West Coast division of the S.L.E. Lupus Foundation founded by renowned physician and author, Daniel J. Wallace, MD, serves the needs of people with lupus and their families across southern California. Lupus LA raises lupus awareness and supports lupus research on the national level.