July 2008 |
For nearly 40 years, the S.L.E. Lupus
Foundation has been providing help for people
with
lupus and their families, funding lupus
research and
fostering public awareness of this chronic
illness. Today, with its west coast division, Lupus LA, and its national research
partner, the Lupus Research Institute,
the Foundation is improving lives across the
country while pioneering paths to a cure.
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What You Should Know about Lupus |
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Not All Sunscreens Are Alike
 We've just released a new brochure in our "What You Should Know about Lupus" series: Lupus and Your Skin by Dr. Andrew G. Franks, Jr., a New York City dermatologist and expert on lupus skin complications.
In it, he gives advice on smart sunscreen choices:
"Choose a product with a Sun Protection Factor of 30 or higher and
which contains avobenzone (Parasol 1789), titanium dioxide, and/or zinc
oxide, as these provide the broadest protection against both UVA and
UVB. A newer ingredient, mexoryl, is available in some sunscreens and
is very effective against UVA. Slather on before makeup, and no less
than 10 minutes before going outside."
Would you like to read more? »
Or think your doctor should display this brochure and others in the "What You Should Know about Lupus" series? Call us at 800-74-LUPUS and we'll send you copies to take with you on your next visit. See a list of all our "What You Should Know about Lupus" brochures »
Dr. Franks, who penned the brochure, is launching a clinical trial on lupus and skin, one of dozens of trials that needs volunteers. The goal: better treatments and a cure for lupus. Find a trial near you by searching LupusTrials.org »
A Makeover for the Face of Lupus
Lupus LA supporter Nicole Paxson, who has lupus, is fighting back against the disease by
creating a line of cosmetics that helps women -- no matter what challenges
they've faced -- regain confidence in the way they look. See what she's done »
Good News for Seniors with Lupus
Last week, congress voted to force the enactment of the Medicare Improvements for Patients
and Providers Act, which means, among other things, that people with lupus on Medicare will now have easier access to "off-label" medications and also get coverage of certain medicines, such as benzodiazepines, that Medicare Part D currently excludes. Learn more » |
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What's Been Happening? |
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Learning from the Experts on Lupus in LA
The city's largest annual lupus patient education conference drew over 100 people to hear about research and rising prospects for better prevention and
treatments. At the podium were some of the city's finest lupus
physicians and investigators.
One of the topics that generated a lot of conversation was
complimentary and alternative medicine approaches to lupus, presented
by Swamy Venuturupalli, MD. View his slide show as well as others from the conference at LupusLA.org »
June in New York: Three Unique Programs, 500+ Attendees, Immeasurable Impact!
As summer launched, we were busy with new events around the city such as our Living Healthy with Lupus program at the Hospital for Special Surgery in Manhattan (that offered makeovers, massages and more) and our first lupus Creole presentation in Brooklyn.
Thanks to all those who attended, and to those who missed out, more programs are headed your way! Email us with ideas on what you'd like to see at lupus@lupusny.org.
NY's Young Leadership Committee Kicks Off Summer
 More than 100 young professionals and lupus supporters
celebrated the official start of summer on the Queens riverfront at
sandy Water Taxi Beach, which generously provided food and
heat-beating libations -- and a spectacular view of the sunset over
midtown. View Photos »
Next: the committee's biggest annual fundraiser, The Night for the Fight on Thursday, September 25th at Touch. Come to network, dance, participate in our luxury item raffle and raise funds to fight lupus with your friends and coworkers. Tickets go on sale in August.
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What's Coming Up? |
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 Lupus LA at the NASCAR PEPSI 500
Sunday, August 31th
Auto Club Speedway - Fontana, CA
Join Lupus LA at southern California's biggest Labor Day party! As a featured charity partner, we'll pass out lots of information on lupus and sign up new members. Until July 31st -- just a few days from now -- we're offering a special "Loops for Lupus" ticket package for $95 -- nearly half of which comes back to the cause. For tickets, log onto www.autoclubspeedway.com/lupus.
Have ideas on other potential sponsors or partners for lupus? Let us know! Email lupus@lupusny.org.
It's Going to Be a Busy Fall — Join Us!
September + October (Dates/Locations TBA)
Get into the Loop! Hospital Tour 2008
in Manhattan, Brooklyn, Queens, Staten Island and the Bronx
Thursday,
September 25th
Young
Leadership Committee's Night for the Fight
at
Touch - New York, NY
Saturday, October 25th
New York Pumpkin Festival
at Central Park - New York, NY
Friday,
November 7th
Lupus LA Hollywood
Bag Ladies Lupus Luncheon
at
the Beverly Wilshire Hotel in
Los Angeles
Thursday,
November 20th
"Life without Lupus" Gala 2008
at the Marriott Marquis in New York
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About the S.L.E. Lupus Foundation
The S.L.E.
Lupus Foundation is the preeminent lupus organization providing direct patient services,
education, public awareness, and funding for lupus research.
About Lupus LA
Lupus
LA, the west coast division of the S.L.E. Lupus Foundation founded by renowned
physician and author, Daniel J. Wallace, MD, serves the needs of people with
lupus and their families across southern California.
Lupus LA raises lupus awareness and supports lupus research on the national
level. |
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