About Lupus

Reasons to Join a Lupus Support Group

Being truly “supported” is a powerful feeling that many people with lupus long to have, and that can help enormously in riding out the emotional “rollercoaster” of life with this exhausting and unpredictable chronic illness.

With its ups and downs and flares and remissions, lupus can lead to overwhelming feelings of loss and lack of control. Anxiety, anger, loneliness and isolation are common. Many people with lupus say they feel misunderstood by friends, colleagues, and loved ones.

But there is support out there for all with lupus—in the form of “support groups” where people with the disease get together at a regular time every week or month to talk. Support groups happen in homes, clinics, offices, libraries, coffee shops, hospitals, religious institutions and other quiet corners in neighborhoods across New York and the country.

Typically coordinated by professional facilitators, these safe groups can give people—including yourself if you decide to take part—many things.

  • A sense of connection. Meeting and talking with others who understand your feelings and concerns will help you fight back loneliness and isolation, and can actually boost emotional and physical well-being.
  • Coping skills. Get ideas for dealing with lupus, preparing for flares, handling finances, and not just surviving but even thriving with lupus.
  • Structure. Most support groups meet at regular intervals during the year and can become something you look forward to and rely on.
  • Motivation and hope. Be inspired to take a meaningful role in your own care and the future you envision for yourself by sharing and listening to others.
  • Information. Stay on top of the latest in research, trials, and possibilities for new medications as you hear and share news with others.
  • Friendship. When it happens, it can provide a potent tonic for helping to normalize feelings and concerns.

“The support group is an important part of my life. The group encourages me to not give up, especially during a flare. I feel connected and part of a group that understands me and can relate to my worries, frustrations and my emotional well-being.”
– Maria S

“I have found a place that understands me. We are like a family…sisters joined together to comfort each other and help me to deal with the ups and downs of lupus. It is a valuable support and guidance for my life.”
– Robin R