Lupus Links
The S.L.E. Lupus Foundation recommends the following websites as additional resources for lupus patients, friends, and family.
Government
Medical and Health Care Organizations
Other Lupus Organizations
New York City Hospitals
Other Useful Sites
Lupus Blogs
Government
- National Institute of Health (PDF Fact Sheet on Lupus)
- ClinicalTrials.gov
- Healthfinder
- MEDLINEplus
- MEDLINEplus Lupus Patient Education Page
- National Center for Chronic Disease Prevention and Health Promotion CDC)
- National Center for Complementary and Alternative Medicine (NCCAM)
- National Institute of Allergy and Infectious Diseases (NIAID)
- National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
- National Institute of Diabetes & Digestive & Kidney Diseases (NIDDK)
- National Institutes of Health (NIH)
- The National Women’s Health Information Center
- News from the National Institutes of Health (NIH)
- Office of Research on Women’s Health
- The Office on Women's Health (OWH)
- Agency for Healthcare Research and Quality
Medical and Health Care Organizations
- American Academy of Allergy Asthma & Immunology
- American Academy of Dermatology
- The American Academy of Facial Plastic and Reconstructive Surgery
- American Autoimmune Related Diseases Association
- American College of Rheumatology
- American Fibromyalgia Syndrome Association, Inc.
- American Medical Association
- Antiphospholipid Antibody Syndrome Foundation of America
- Arthritis Care (UK)
- Arthritis Foundation
- The Arthritis Society (Canada)
- Arthritis Daily
- Dermalogica: Skin Care System Researched and Developed by the International Dermal Institute
- Fibromyalgia Association of Greater Washington
- Lupus, Lupus Treatment, Hughes Syndrome - The London Lupus Centre
- The Myositis Association
- National Fibromyalgia Association
- National Osteoporosis Foundation
- National Pain Foundation
- National Sarcoidosis Resource Center
- Online Health Resources
- Raynaud’s & Scleroderma Association (UK)
- Scleroderma Foundation
- Sjogren’s Syndrome Foundation
- Society for Women’s Health Research
Other Lupus Organizations
- European Lupus Erythematosus Federation (ELEF)
- Lupus Alliance of America
- Lupus Canada
- Lupus Foundation of America
- Lupus Foundation of America, Illinois Chapter
- Lupus Foundation of Colorado
- Lupus Foundation of New England
- Lupus Foundation of Northern California
- Lupus Foundation of Pennsylvania
- Lupus Mid-Atlantic
- Lupus Research Institute
- Alliance for Lupus Research
- DxLupus
New York City Hospitals
- Bellevue Hospital Center
- Beth Israel Medical Center
- Columbia University Medical Center
- Hospital for Joint Diseases
- Hospital for Special Surgery
- Lenox Hill Hospital
- Metropolitan Hospital Center
- Montefiore Medical Center
- New York-Presbyterian: The University Hospital of Columbia and Cornell
- New York University Medical Center
- North Shore-Long Island Jewish Health System
- Saint Luke’s-Roosevelt Hospital Center
- Saint Vincent Catholic Medical Centers
Other Useful Sites
- Arthritis of the hip and knee
- Doctor certification information
- Doctor licensing information
- HealthScout
- American Heart Association
- Johns Hopkins University Welch Medical Library
- Lupus UK
- Mayo Clinic
- Medicare Interactive
- Meals For You
- MedicineNet
- The Merck Manuals
- Rx List
- ABC’s of Melanoma
- The University of California's Berkeley Wellness Letter
- WebMD
Lupus Blogs
More and more, people with lupus are writing personal online journals (“blogs”) about their experiences with the disease. Below are links to a number of these blogs currently on the World Wide Web. Note: The thoughts and feelings expressed on these sites do not represent the opinions or views of the S.L.E. Lupus Foundation.
Do you “blog” about life with lupus as well? Let us know! Email lstegmaier@lupusny.org to ask about sharing your site with us.
- But You Don’t Look Sick
- Carpe Diem – Seize the Day
- Dancing with Butterflies
- How Can I Explain It to You? The Life of a Grad Student with Lupus
- Karyl's Glimpses of Eternity: Lupus and Life
- Keep Working, Girlfriend
- Laughing with Mr Lupus
- Living La Vida Lupus (Lisa)
- Living La Vida Lupus (Tiffany)
- Living with LUPUS!
- Life Beyond Lupus
- Luanne's Life Living with Lupus
- LUPUS: My View after 35 Years
- Lupus and Humor
- Lupus and lupus-related illnesses' Journal
- Lupus Lifestyle
- Lupus McDupus
- Mommy, Please Don't Be Sick
- Pieces of Me
- Tengo Lupus
- Winning Against LUPUS (SLE)
- Wolves Ate My Kidneys