About Lupus

Lupus Coping Corner

Learn and Share During Lupus Awareness Month

Jessica Rowshandel, M.S.W.
Amy Caron
Project Director
Lupus Research Institute

May is Lupus Awareness Month, a month to increase public attention to lupus by providing others with information. And being as informed as we possibly can is one of the best ways to be empowered.

The old saying, “knowledge is power,” has endured simply because it is true. It is not only important to understand lupus symptoms and its development. It is also helpful to know about how lupus should be treated and monitored as well as how to create a lifestyle for yourself that is best suited for managing and coping with the disease. That’s quite a lot of information; if you go without it, you are denying yourself having all the tools you can get to manage your lupus and to keep yourself as healthy as possible, both physically and emotionally.

In order for knowledge to truly be powerful, it is important for that knowledge to be factually correct. The Internet is filled with a lot of information, some accurate, and unfortunately, some inaccurate. I always advise people to stick to information from the government, universities, hospitals, and reputable organizations that responsibly obtain their information from reliable sources. Here at the S.L.E. Lupus Foundation we work hard to provide top quality information to our patients both locally and across the globe.  And we strongly encourage you to take this information to empower yourselves. You are your best advocate, as many of my support group members frequently say!

We have a growing library of free, Internet-based lectures from top lupus experts. Inviting friends and family to listen and watch with you is a great way to help them understand lupus, as well.

Webinars

Summaries of Live Presentations from 2012 and 2013 

Upcoming Webinar
June 3rd at 12pm
Labs and Lupus: What do they Mean?
with Beverly Johnson, MD

Upcoming Local Events
Tuesday, May 7th at 6pm
Skin Care, Weight Control and Feeling Good with Lupus
with Amanda Sammut, MD and Sharon Isaac, MS, CDN (Nutritionist)

Thursday, May 16th at 6pm
Lupus and the Effect of Medication
with Mona Pervil, MD

The NYC Poison Control Center: A Resource for Questions About your Medicines
with Luz Martinez

“Knowledge is power. Information is liberating. Education is the premise of progress, in every society, in every family.” – Kofi Annan, the seventh Secretary General of the United Nations, 2001 Noble Peace Prize Winner. 

Visit our website for other simple suggestions, print brochures, catch up on our past webinars to learn more about lupus and share the information on your social media pages.

Update: We are no longer accepting comments on our site, but please share your thoughts on our Facebook page .

 

Lupus Coping Corner

Disclaimer: The information provided by the S.L.E Lupus Foundation is for educational purposes only and should not be used for diagnosing or treating a medical or mental illness, nor be a substitute for professional care. Consult your healthcare provider if you have or suspect you may have a medical or mental health problem.

Amy Caron, MPH is a lupus patient and Project Director of the Lupus Research Institute provider education initiative.  She is not a physician or counselor.  The suggestions shared in this column are strictly opinions from the perspective of a lay person with lupus. Lupus is a very individualized illness; consult a healthcare professional before making any decisions about your care.

The S.L.E. Lupus Foundation does not provide any direct medical or psychological services nor recommend or endorse any particular treatment or therapy. The S.L.E. Lupus Foundation employees, consultants, and agents shall not be liable for any claims or damages, and expressly disclaim all liability of any nature for any action or non-action taken as a result of the information generated by the S.L.E. Lupus Foundation programs and its website, as well as the S.L.E. Lupus Foundation Facebook and Twitter pages.